ALD Connect Educational Videos & Webinars

These educational webinars and videos on adrenoleukodystrophy covering many aspect of the disease are organized by ALD Connect

A 10 minute overview of ALD

Produced by Youreka Science in collaboration with ALD Connect, Inc.

AMN Exercise Video

Produced by Ben Lenail in collaboration with ALD Connect, Inc.

Introduction to Adrenoleukodystrophy (ALD)

Presented by Dr. Keith VanHaren for ALD Connect, Inc.

I Just Got Diagnosed, Now What?

*Please note- The link to the ALD guidelines that was shown on a couple of the slides is incorrect. The correct link is http://www.ojrd.com/content/7/1/51

Presented by Dr. Keith VanHaren for ALD Connect, Inc.

Genetics & Reproductive Options

Presented by Dr. Leila Jamal for ALD Connect, Inc.

Implementing Newborn Screening for ALD

Presented by Dr. Amber Salzman and Elisa Seeger for ALD Connect, Inc.

Walking & AMN

Presented by Dr. Kathleen Zackowski for ALD Connect, Inc.

Clinical Trials for ALD

Presented by Dr. Stephan Kemp for ALD Connect, Inc.

The Invisible Family Member: supporting siblings through family medical illness.

Presented by Dr. Katie Weagle for ALD Connect, Inc.

Reflexion Health – The Vera

Presented by Reflexion Health for ALD Connect, Inc.

Bone Marrow Transplantation in ALD

Presented by Dr. Troy Lund, M.D., Ph.D. for ALD Connect, Inc.

Women with ALD

Presented by Dr. Marc Engelen, M.D., Ph.D. for ALD Connect, Inc.

If you have any questions, comments, or concerns about the information presented to you, please contact ALD Connect at admin [at_symbol] aldconnect.org or 001-617-643-4218.

Last modified | 2023-11-28