On Twitter
Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.
Toevoeging van de #stofwisselingsziekte #ALD aan de #hielprik komt dichterbij. De voorbereiding voor het aanbieden van het implementatieplan aan @MinVWS is in volle gang. Met vandaag een stakeholdermeeting in @amsterdamumc. #gezondheidswinst @Metakids @Stofwissel_VKS @rivm
New #podcast: @StephanKempNL returns to tell us about the pilot project for Sex-specific newborn screening for X-linked ALD in the Netherlands.
Soundcloud: https://t.co/bmalcbIQg7
Apple: https://t.co/7ITnEXsdSg
Spotify: https://t.co/XEgBubUI2z
#scicomm #newbornscreening
The first sex-specific newborn screening program worldwide. Free accessible: https://t.co/2prXFsz64S
Screening of 71 208 newborns resulted in the identification of four boys with adrenoleukodystrophy. The algorithm is ready for nationwide ALD screening in the Netherlands.
Via @GreenJournal: Experts suggest coordinating efforts to improve the diagnosis and management of patients with X-linked #adrenoleukodystrophy, a rare and unpredictable disease: https://t.co/ygnOHHNBzh
#neurology @neurotwitter @AANmember @ald_team
Treatment of cerebral ALD: a highly informative review of the potential risks and benefits of hematopoietic stem cell transplant and lentivirus-based gene therapy. Free paper: https://t.co/IS9TXSvRgJ
Last modified | 2019-09-24