On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.

Today at Amsterdam UMC, the kick-off meeting for the SCAN study: Screening #adrenoleukodystrophy in the Netherlands. Toward #newbornscreening for #ALD. A collaboration between @rivm, @ZonMw, @AMC_NL and @Stofwissel_VKS

The basics of #adrenoleukodystrophy explained in a 10 minute overview produced by @ALDConnect

10 US states (https://t.co/LUXFtZsPKj) screen for #adrenoleukodystrophy
That’s 1,350,000 newborns/year, and 36% of all US newborns.
With a birth incidence = 1:15,000 (M+F) each year 45 ALD boys are identified.
Early diagnosis leads to life-saving interventions!

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Last modified | 2018-03-26