On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.


Our agendas are up on the website!

The ULF Conference is meant for the whole family to attend and this year we are introducing Youth and Teen programing along with our General Sessions for adults. Check the agendas out here!...

Conference | United Leukodystrophy Foundation

Save the Date! Registration opens on April 8th! We look forward to you joining us June 27-29, 2019 in Itasca, IL! Mark your calendars now for the 2019...


I am en route to Paris for the @ELAOfficielle Scientific Committee meeting. Tomorrow, at the ELA Families and Scientists conference, I’ll present on our progress in the Netherlands with the SCAN study #newbornscreening #ALD

Women with ALD are not just carriers, as that description implies these women never experience any symptoms. For more info, please read the #OpenAccess publications: https://t.co/QAAhdZJR59 (2019) and https://t.co/Lxgj934fRq (2014) and/or visit: https://t.co/bUNpGVImJ8

Join the conversation moderated by a well-known #ALD advocate as she discusses Young Adults with #ALD this Wed, 3/20 @ 6pm ET by going here: https://t.co/JeiB3MfWUP #patientpowered #raredisease

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Last modified | 2018-03-26