On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.

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TeamALD of the Amsterdam UMC is focused on all aspects of Adrenoleukodystrophy. #newbornscreening #biomarkers #clinicaltrials #patientcare #research #ALD

TeamALD @ald_team·

18 Oct

Optical Coherence Tomography (OCT) is a non-invasive imaging test. We're investigating its utility as a biomarker of disease progression in ALD.
#adrenoleukodystrophy #leukodystrophy #clinicaltrials #biomarkers #researchisfun #menwithbeards

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Metakids @Metakids·

3 Oct

Sinds deze week startte een proef in Amsterdam UMC met de metabole ziekte ALD voor in de hielprik. Een wereldwijde primeur, want alleen jongens worden getest. Lees:
https://t.co/Ix6xA8eArI @ALD_Group

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TeamALD @ald_team·

2 Oct

Met ALD-proef in hielprik voorop

Sinds deze week test de hielprikscreening jongens in vier provincies ook op de metabole ziekte ALD. Het is een proef van een jaar, die…

www.metakids.nl

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TeamALD @ald_team·

1 Oct

We started! Today we started the ALD newborn screening pilot in the Netherlands.
#adrenoleukodystrophy #scanstudy #newbornscreening #pediatrics #publichealth #hielprik #netherlands #researchisfun #milestone
@rivm @ZonMw @amsterdamumc @SteunEmma @Metakids @Stofwissel_VKS

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TeamALD @ald_team·

25 Sep

Medical envelopes for sending the bloodspots between the labs involved in the SCAN study
#adrenoleukodystrophy #newbornscreening #pediatrics #leukodystrophy #publichealth #hielprik #netherlands #logistics

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Last modified | 2019-09-24