On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.

Have you signed up for @AldFamily yet? Apprehensive about camping? Don’t worry there are really nice cabins, think of it like “glamping” and it’s only $75 for the entire family! sign up here: |… https://t.co/v8fmqbPSVE

Has your child screened positive for ALD on newborn screening in the states of California or New York? If so, please consider participating in a one-time online survey assessing caregiver quality of life. Your insight matters! #adrenoleukodystrophy #newbornscreening #ALD

Overview of the US states that have started ALD newborn screening since New York State started Dec 2013 (yellow colored states are running a pilot). #adrenoleukodystrophy #newbornscreening @aidanslaw

Optical Coherence Tomography (OCT) is a non-invasive imaging test. We're investigating its utility as a biomarker of disease progression in ALD.
#adrenoleukodystrophy #leukodystrophy #clinicaltrials #biomarkers #researchisfun #menwithbeards

Sinds deze week startte een proef in Amsterdam UMC met de metabole ziekte ALD voor in de hielprik. Een wereldwijde primeur, want alleen jongens worden getest. Lees:
https://t.co/Ix6xA8eArI @ALD_Group

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Last modified | 2019-09-24