On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.

Work continues in the summer. Large datasets are cool 😎. #adrenoleukodystrophy #metabolicdisease #pediatrics #diagnosis #biomarkers #DataAnalytics #statistics #lipidomics #lifeofarockstar
https://t.co/No4FP5fLNx

Very exciting work in progress: the #SCANstudy information brochure and our website for parents!
#adrenoleukodystrophy #newbornscreening #metabolicdiseases #Pediatrics #hielprik #Netherlands #publichealth @ZonMw @rivm @amsterdamumc
https://t.co/iGB28bRjV7
https://t.co/S3O595spw1

Stephan and Rinse are punching hundreds of bloodspot samples for the validation of our unique #adrenoleukodystrophy #newbornscreening algorithm.
https://t.co/YEnz0CuMPH

It’s always a privilege to hear Jon’s incredible story of a Bone Marrow Transplant for #ALD #ulfchicago

With Illinois, now 12 US states (https://t.co/K6HCPOG7dm) screen newborns for #adrenoleukodystrophy.
That’s ~1.6 million newborns/year and 41% of all US newborns.
Each year 54 ALD boys are identified.
Early diagnosis leads to life-saving interventions!

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Last modified | 2018-03-26