On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.

TeamALDFollow163118

TeamALD of the Amsterdam UMC is focused on all aspects of Adrenoleukodystrophy. #newbornscreening #biomarkers #clinicaltrials #metabolicdisorder #ALD

TeamALD @ALD_group·

23 Jul

Work continues in the summer. Large datasets are cool 😎. #adrenoleukodystrophy #metabolicdisease #pediatrics #diagnosis #biomarkers #DataAnalytics #statistics #lipidomics #lifeofarockstar
https://t.co/No4FP5fLNx

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TeamALD @ALD_group·

18 Jul

Very exciting work in progress: the #SCANstudy information brochure and our website for parents!
#adrenoleukodystrophy #newbornscreening #metabolicdiseases #Pediatrics #hielprik #Netherlands #publichealth @ZonMw @rivm @amsterdamumc
https://t.co/iGB28bRjV7
https://t.co/S3O595spw1

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TeamALD @ALD_group·

9 Jul

Stephan and Rinse are punching hundreds of bloodspot samples for the validation of our unique #adrenoleukodystrophy #newbornscreening algorithm.
https://t.co/YEnz0CuMPH

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Patient Worthy @PatientWorthy·

29 Jun

It’s always a privilege to hear Jon’s incredible story of a Bone Marrow Transplant for #ALD #ulfchicago

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TeamALD @ALD_group·

18 Jun

With Illinois, now 12 US states (https://t.co/K6HCPOG7dm) screen newborns for #adrenoleukodystrophy.
That’s ~1.6 million newborns/year and 41% of all US newborns.
Each year 54 ALD boys are identified.
Early diagnosis leads to life-saving interventions!

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Last modified | 2018-03-26