On Twitter
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Today Dr Mirjam Langeveld @MarcEngelen and @StephanKempNL presented at the annual @Stofwissel_VKS Dutch #ALD patient meeting. This years topics covered: adrenal insufficiency, the Minoryx ADVANCE trial, "the Dutch ALD Cohort" & clinical endpoints, and #newborn screening.
Registered for the #ALD #AMN conference yet? Don't miss your chance to meet the experts and connect with other families and advocates. Discounted room rate ends October 5th. https://t.co/4oF25togRc
🎈 | Om aandacht te vragen voor Stichting #Metakids en de bestrijding van metabole ziekten nemen de Eredivisie-spelers dit weekend allemaal een ballon mee het veld op.
Rick Brandsteder ambassadeur Metakids: in actie tegen metabole ziekten
Dit weekend zullen er bij elke Eredivisie-wedstrijd gekleurde ballonnen het op worden meegenomen. Dit gebeurt in het teken van Metakids. Dez...
www.foxsports.nl
Yesterday 15 metabolic specialists from six university medical centers in the Netherlands discussed joining forces to find a diagnosis in children who suffer from an unknown disease. All in very good spirit #unitedformetabolicdisease
Minoryx starts MIN-102 enrollment for #AMN #clinicaltrial for men at three US sites: Stanford in Palo Alto, Kennedy Krieger in Baltimore, and Mass General in Boston! If you're eligible, message us for site contact info. Eligibility info: https://t.co/Lbu9oBcWeK #ALD
Last modified | 2018-03-26