On Twitter
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Today at Amsterdam UMC, the kick-off meeting for the SCAN study: Screening #adrenoleukodystrophy in the Netherlands. Toward #newbornscreening for #ALD. A collaboration between @rivm, @ZonMw, @AMC_NL and @Stofwissel_VKS
These results will help in the design of clinical trials and the development of new biomarkers for the myelopathy of adrenoleukodystrophy.
Knowledge of the natural history of the myelopathy in #ALD is of paramount importance for evaluation of new therapies in clinical trials. The progression of myelopathy can be quantified using practical and clinically relevant outcome measures. https://t.co/q2HSvjry6X
The basics of #adrenoleukodystrophy explained in a 10 minute overview produced by @ALDConnect
10 US states (https://t.co/LUXFtZsPKj) screen for #adrenoleukodystrophy
That’s 1,350,000 newborns/year, and 36% of all US newborns.
With a birth incidence = 1:15,000 (M+F) each year 45 ALD boys are identified.
Early diagnosis leads to life-saving interventions!
ALD -- crappy disease/amazing people via @wordpressdotcom #ALD #smilesandducttape #THISisALD
ALD — crappy disease/amazing people
I hate that I know how to spell Adrenoleukodystrophy and know words like phenotype and chimerism. I hate knowing the difference between stem cell tran...
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Last modified | 2018-03-26