On Twitter
Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.
@realneurovia announces the initiation of a Phase 1/2 clinical study of their lead drug candidate, NV1205, in patients with childhood cerebral adrenoleukodystrophy (CCALD) #ALD. No sites yet in the US.
NeuroVia Initiates Phase 1/2 Trial of NV1205 for Treating Childhood Cerebral Adrenoleukodystrophy (CCALD)
NeuroVia, Inc., a biopharmaceutical company focused on developing innovative therapies for rare, genetic neurological diseases, today announced the in
ow.ly
@pleitschrijver @tiersbakker Capitalists should never be allowed near a healthcare system.
Chris Hedges
Some US newborn screening facts:
10 states screen for #adrenoleukodystrophy
Each year ~1,350,000 newborns
34% of all US newborns
Birth incidence = 1:15,000 (M+F)
Each year 45 ALD boys are identified
Early diagnosis can lead to life-saving interventions
https://t.co/6eO93R4bAO
North Carolina had become the latest state to add #ALD to their #newbornscreening program. This is fantastic news for families in the area and could help the progress of newborn screening campaigns across the US and UK: #raredisease
North Carolina Has Added Three More Conditions to Their Newborn Screening Program - Patient Worthy
The state of North Carolina has added three more conditions to their newborn screening program; Pompe disease, Mucopolysaccharidosis type 1 (MPS 1), a...
patientworthy.com
State #10!!
Great news Kentucky started testing for ALD yesterday July 9th - on our way to nationwide!!
Last modified | 2018-03-26