On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.

Toevoeging van de #stofwisselingsziekte #ALD aan de #hielprik komt dichterbij. De voorbereiding voor het aanbieden van het implementatieplan aan @MinVWS is in volle gang. Met vandaag een stakeholdermeeting in @amsterdamumc. #gezondheidswinst @Metakids @Stofwissel_VKS @rivm

New #podcast: @StephanKempNL returns to tell us about the pilot project for Sex-specific newborn screening for X-linked ALD in the Netherlands.

Soundcloud: https://t.co/bmalcbIQg7

Apple: https://t.co/7ITnEXsdSg

Spotify: https://t.co/XEgBubUI2z
#scicomm #newbornscreening

The first sex-specific newborn screening program worldwide. Free accessible: https://t.co/2prXFsz64S
Screening of 71 208 newborns resulted in the identification of four boys with adrenoleukodystrophy. The algorithm is ready for nationwide ALD screening in the Netherlands.

Via @GreenJournal: Experts suggest coordinating efforts to improve the diagnosis and management of patients with X-linked #adrenoleukodystrophy, a rare and unpredictable disease: https://t.co/ygnOHHNBzh

#neurology @neurotwitter @AANmember @ald_team

Treatment of cerebral ALD: a highly informative review of the potential risks and benefits of hematopoietic stem cell transplant and lentivirus-based gene therapy. Free paper: https://t.co/IS9TXSvRgJ

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Last modified | 2019-09-24