On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.

Utah, @UtahDepOfHealth has recommended to add #SMA, #Pompe, #MPS1 and #ALD to its panel. SMA screening starts July 2018. Pompe, MPS1 and ALD screening starts July 2019. Congrats to @ALDConnect board member Dr. Josh Bonkowksy and other ALD advocates!

Utah, @UtahDepOfHealth has recommended to add #SMA, #Pompe, #MPS1 and #ALD to its panel. SMA screening starts July 2018. Pompe, MPS1 and ALD screening starts July 2019. Congrats to @ALDConnect board member Dr. Josh Bonkowksy and other ALD advocates!

Honored to share my story at the @ALDConnect annual meeting. "Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 18,000 people.” Such a strong community moving forward together.

Honored to share my story at the @ALDConnect annual meeting. "Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 18,000 people.” Such a strong community moving forward together.

One way to connect #ALD patients, researchers, and #pharma companies: our industry advisory council. 6 companies are participating in our Patient Learning Academy!

One way to connect #ALD patients, researchers, and #pharma companies: our industry advisory council. 6 companies are participating in our Patient Learning Academy!
One way to connect #ALD patients, researchers, and #pharma companies: our industry advisory council. 6 companies are participating in our Patient Learning Academy!
One way to connect #ALD patients, researchers, and #pharma companies: our industry advisory council. 6 companies are participating in our Patient Learning Academy!

Females with ALD are not just carriers, as that description implies these women never experience any symptoms. For more info: https://t.co/8m3rAvw3IT and https://t.co/V8o4QGrKmQ

Females with ALD are not just carriers, as that description implies these women never experience any symptoms. For more info: https://t.co/8m3rAvw3IT and https://t.co/V8o4QGrKmQ
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Last modified | 2017-09-29