On Twitter

Follow the ALD database on twitter to keep up-to-date with the latest news and other interesting facts related to ALD. Or read our latest tweets below.

Excellent presentation by Frits Wijburg @AMC_NL at the annual Amsterdam Pediatric Symposium. Drugs for orphan diseases: a big and very expensive issue.
Who knows the solution that's acceptable for all stakeholders??

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Join us Feb 22 from 4-5pm EST as we hold our next #breakoutsession for Women with #AMN #ALD. Register for the conference call: https://t.co/d0SsLR1Nzd

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"In the case of these rare diseases, most physicians who will treat your child have never even heard of—much less have any degree of medical expertise in—the disease at hand.” Something we in the #ALD community must change. #ALDawareness https://t.co/DNnpM4g1zv

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Released the new website for @ALDConnect yesterday. Very proud on the result. I hope to have provided a solid foundation for them to inform people of their important work.

.@StephanKempNL discussing @ALD_database at @aidanslaw ALD Standards of Care Conference

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Image for the Tweet beginning: .@StephanKempNL discussing @ALD_database at @aidanslaw
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Last modified | 2017-09-29