Marc Engelen received his MD from the University of Amsterdam, the Netherlands in 2002. He was trained as a neurologist and subsequently subspecialized in pediatric neurology at the Academic Medical Center (AMC), also in Amsterdam. In 2012, Dr. Engelen obtained a PhD on “Translational studies in Adrenoleukodystrophy”. He is currently a member of the medical staff of the Departments of Neurology and the Department of Pediatrics at AMC and has a special interest in peroxisomal disorders. In 2015, the AMC was designated the national expert center for this group of diseases. His research focuses on adrenoleukodystrophy and in 2014 he received a Veni grant from NWO (Netherlands Organization for Scientific Research) to study the natural history of adrenoleukodystrophy and identify predictive biomarkers for the onset of cerebral adrenoleukodystrophy.
Stephan Kemp is an associate professor and Principal Investigator at the Department of Genetic Metabolic Diseases / Pediatrics at the Academic Medical Center (AMC), University of Amsterdam, the Netherlands. Dr. Kemp was trained as a translational researcher at Johns Hopkins University/ Kennedy Krieger Institute, Baltimore, Maryland, USA and obtained his PhD in 1999 at the University of Amsterdam. He has more >20 years of experience with adrenoleukodystrophy research and published >70 papers and book chapters on adrenoleukodystrophy. In 1999, together with Dr. Hugo Moser, he initiated the ALD database (www.x-ald.nl), which moved to www.adrenoleukodystrophy.info in 2017. He is chairman of the European Adrenomyeloneuropathy board, scientific advisor of the Dutch ALD patient organization and the Stop ALD Foundation and a member of the board of directors of ALD Connect. In 2015, he received the AMC Societal Impact Award (ASIA). His research focuses on lipid metabolism and neurotoxicity.
Last modified | 2017-11-13